Down with disease

Down with disease
Three weeks in my bed
Trying to stop these demons that keep dancing in my head

Down with disease
Up before the dawn
A thousand barefoot children outside dancing on my lawn, and I keep

Waiting for the time when I can finally say
That this has all been wonderful but now I'm on my way
But when I think it's time to leave it all behind
I try to find a way but there's nothing I can say to make it stop

This song references two things going on in my life at the same time, one of them being my chronically ill daughter, and the other referencing the notion of changing a major portion of one's life, and since that change may or may not happen, it is best to not get too specific there. After all, It could be an illusion
but I might as well try .

But back to Sara, about one month after the first of two late night trips to the emergency room, and a third late night visit there that became the first of two days at the hospital, one endoscopy that resulted in several possessed demonic statements to nurses insulting their religion and kicks to the shins on top of that upon the little monster, coming to from the anesthesia (it probably appeared to be the Omen coming to life to some of them), and a recent set of allergy tests - where are we as far as an official diagnosis? The answer is - we aren't there yet. Food allergies for the time being have been ruled out. Lactose intolerance - reaction to milk products - appears to be a hot suspect. The notion that this is all psychosomatic - psychiatric symptoms related to stress - seems to pin it all on one horse, and although I agree that stress is a factor, that seems to simple too. There is no stress in her life now - no school, no summer program. Sure - school is around the corner, and I always found it stressful to go back, but as summer goes her life is pretty stress free. One of Victoria's friends from San Diego with Crohn's Disease says the symptoms look very similar to hers - and even though bloody stool is a symptom of Crohns not present here, it does not necessarily have to be there. So - without being set on a diagnosis yet, I say Crohn's and lactose intolerance, with a little stress and anxiety on the side, are the most likely explanation at this point, but not yet confirmed. We have seen the one and only GI Pediatrician specialist in the Northern Nevada region, and will return to see him. In the mean time, it has improved, but cries of intense stomach pain manifest about once a day, usually at night, and this has not gone away yet.

This may make any type of travels difficult - and I know she would like to make the trip down to Mammoth Lakes next weekend, but if she still has this condition then - that is not likely for her either, though I will make an effort to get away for at least a day or so if I can.

There it is - the official update - and as far as the other vague reference, I will have a much better idea of what may be happening there in a couple weeks.